About Us

In March of 2009, our world was turned upside down when our daughter, Lucy Rose, was diagnosed with High Risk Neuroblastoma at age 3. Her tumor was found during a routine well-child check. Since then, she has endured 2 surgeries, 6 cycles of chemotherapy, 14 rounds of radiation, 6 months of cis-retinoic acid, 14 cycles of 3f8 antibody and multiple blood transfusions, hospitalizations and medical tests.
 

Today, Lucy is 7 years old and enjoying life as a first grader. She has been NED (no evidence of disease) since her tumor was removed, and we hope and pray that she remains NED for the rest of her life. Research is why Lucy is alive and well today, but more research is needed. We need research for those children whose cancer is not responding to the treatment that is out there, in honor of all those beautiful children who earned their angel wings because treatments were not enough and for all the children who have fought and are still in the fight.

 

Pediatric cancer research receives the least amount of federal funding of any other cancer.  Because of this, our family is starting a local organization, “Lucy’s Light,” to raise awareness and funds for pediatric cancer research. The funds raised will be given to Cookies for Kids’ Cancer (www.cookiesforkidscancer.com).   We need to band together for our children. Their futures depend on it.

 

 

Important statistics to know:
 

Cancer claims the lives of more children annually than any other disease " more than asthma, muscular dystrophy, multiple sclerosis & AIDS combined.

 

46 children per day are diagnosed with cancer totaling nearly 13,000 new cases per year.  Approximately 4 children die each day from cancer.

 

Cure rates have improved dramatically and advances in childhood cancer research has provided seminal insights into the cancer problem in general. 

 

Survival Statistics:

 

Today, the overall 5 year survival rate for childhood cancer is close to 80%. Because treatment cure rates have increased, the population of childhood cancer survivors has also increased. Currently there are estimated to be 270,000 survivors of childhood cancer in the U.S.  Survival however is with a "cost." Two-thirds of those who do survive face at least one chronic health condition. One quarter of survivors face a late-effect from treatment that is classified as severe or life-threatening. Late-effects of treatment can include heart damage, second cancers, lung damage, infertility, cognitive impairment, growth deficits, hearing loss, and more. It is becoming increasingly apparent that childhood cancer "is for life." Late effects from either the disease process or aggressive treatment regimens are given at a time of life when children have growing bodies and developing brains. As such, patterns of late-effects include disabilities, chronic health conditions, and even subsequent battles with additional cancer. It is imperative that all survivors of childhood cancer receive on-going monitoring and continued physical and psychosocial care throughout their adult lives.